12-year old multiple stroke survivor and fundraiser Ryley Reed, from Llangors, will be closely watching the London Marathon on Sunday, April 21.

Ryley will be cheering on his uncle Sam Redfern, a London firefighter, who survived a massive stroke himself two years ago aged just 44.

Sam, a sub officer at Whitechapel Fire Station in London, said he is inspired to raise funds for stroke charity Different Strokes by the bravery and fundraising efforts of Ryley, who has survived multiple strokes and ‘mini-strokes’ and has raised more than £7,500 during his stroke recovery . 

Sam said: “My nephew Ryley is the reason I’m running. This boy in my opinion is the bravest, most incredible boy on the planet. What Ryley has been through is enough to break the strongest of wills but he has faced all adversity head on and with a smile.”

Ryley, who suffered his first stroke aged 9 while out riding his bike with his mum Kate Reed, raised more than £7,500 during the first year of his stroke rehabilitation. To help inspire him in his physical rehabilitation Ryley took on the Virtual Mount Everest Challenge, walking 40 miles over a period of a few months.

Ryley’s efforts won praise from celebrity fitness coach Joe Wicks and huge support from locals in his village of Llangors.

The money raised helped fund a new playpark in the village, which Ryley opened as guest of honour in July 2023.

Ryley’s strokes are caused by a rare disease called Moyamoya syndrome which affects 1 in a million people in the UK.

The disease causes narrowing of the arteries in the brain, leading to the body forming emergency back-up vessels which appear on a scan as a “puff of smoke”, or “moyamoya”, a term coined by the Japanese team who first described the disease. Moyamoya causes mini strokes, known as Transient Ischaemic Attacks, and can cause major strokes and brain bleeds. In February 2022 Ryley had pioneering, life-saving 10-hour brain surgery to reduce his risk of having another major stroke. For nine months after the surgery Ryley had to minimise any physical or mental exertion- so no clubs, no sports and even no Fortnite!

Ryley after his operation
Ryley after his operation (Image supplied)

Ryley said: "I'm so thankful to Uncle Sam for doing this and raising awareness for Strokes. Having strokes has been very hard for me, it's tiring and has changed my life. It's important to raise awareness of stroke so people know it can literally happen to anyone, even kids like me! I wish I was fit enough to run it with him but I'll be with him every step of the way - we are so proud of him - go smash it Uncle Sam!"

Ryley will be watching the marathon at home in Wales while Sam’s wife and son and members of Sam’s Green Watch crew at Whitechapel Fire Station will be in Central London to cheer Sam on as he runs through the 13-mile and 22-mile checkpoints at Tower Bridge. Sam expects to complete the distance in under four hours.

Sam, a super fit sporty fireman, was aware that strokes could affect younger people due to his nephew Ryley’s experience but never imagined a stroke could happen to him. When it did, Ryley’s Mum Kate was the first person he called for advice and she urged him to seek treatment immediately.

Sam said: 
“One evening my arm went all floppy and I lost my speech, but after about 30 seconds suddenly everything came back to normal again. It didn’t even cross my mind that it was a stroke, I just thought my arm went funny because I was lying on it. I went to bed and… this is going to sound a bit mad, but in my dreams my grandma, who died years ago, told me to go to hospital. In the morning I felt ok but I rang Kate because she has so much expertise in all of this with Ryley, plus she’s a nurse. She told me to go straight to A&E. The people at A&E ran some tests which were all normal. They said it sounds like it’s just a bit of a blip, maybe I’d had a TIA (a Transient Ischaemic Attack) so they booked me in to see someone at the TIA clinic a few days later.

“A couple of days later I remember waiting for a train to get to work and looking at a light and it was so painful, it was like a blowtorch on my brain. At the TIA clinic all the initial tests were normal, but they said we’ll do an MRI scan just to be sure. The stroke consultant was looking at the scan with me, all good, all good, then he suddenly saw the stroke, a left partial infarct, and said, ‘Oh my word, you’ve had a major stroke. You are one very lucky boy, to be talking and walking after that.’

“Well, that was it then, I got signed off work while I recovered and the next few weeks were really hard. I’m not sure I did a great job on following doctor’s orders, but thanks to incredible support from our national health service and my amazing family I’m back working. I’m running, doing my sports, doing some sets as a DJ for firefighter charity nights in an east end night club, all the things I love. I still have some mental fatigue and aphasia related to the stroke, but physically I’m good.

“I know I’m in an extremely fortunate position after my stroke to be alive and to be able to entertain the idea of running a marathon. For many stroke survivors the road to recovery is much harder, and there’s a lot could be done to make their lives that bit less difficult, which is where Different Strokes comes in. I want to help them raise awareness about strokes in young people, especially after everything that’s happened with Ryley.”

Sam is a sub officer at Whitechapel Fire Station in London
Sam is a sub officer at Whitechapel Fire Station in London (Image supplied)

Jo Aurora, Fundraising Manager for Different Strokes said: "Samuel's dedication to running the London Marathon and raising awareness for younger stroke survivors, including himself and his nephew Ryley, is not only impressive but very important. With 1 in 4 strokes happening to people under 60, it's vital to show that strokes aren't just something older people face. By sharing his story, he's not only raising awareness but giving hope to other families who are dealing with the challenges of stroke recovery at a younger age.

“The money he's raising will enable Different Strokes to support families like his, ensuring they receive the help they need, and contributing directly to the assistance provided to the thousands of families supported by Different Strokes each year."

Sam can be supported via his online fundraising page.

More information about Different Strokes can be found on their website: https://differentstrokes.co.uk/